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“Chris Smith (no relation to Patricia Smith) was the driving force behind Lyme disease’s inclusion in the 21st Century Cures Act…”

“…Last winter, those advocates scored a victory when Congress passed the 21st Century Cures Act, which established a national working group on Lyme disease. In June, however, the U.S. Centers for Disease Control and Prevention said it does not recommend prolonged antibiotic therapy — treatment considered vital by the chronic Lyme community.

“This is completely outrageous,” said Smith, who helped author the language in the 21st Century Cures Act. “We thought we were making some progress and they come in slamming the doors. When the CDC says, ‘We do not recommend,’ that’s tantamount to the kiss of death for patients.”

…Lyme disease affects nearly 400,000 people per year in the U.S., and New Jersey has the second-most diagnosed cases (after Pennsylvania). For many who are diagnosed promptly, the standard month-long course of antibiotics mitigates the illness. But detection is difficult, and for thousands of folks, the symptoms can continue for months or years.”

Excerpted. Read the APP’s full story here.